Writing a Data Management Plan

Introduction
What is Data?
5 Topics
Introduction
What Is the Typical Lifecycle of Research Data?
What Is Research Data Management (RDM)?
What Are the Benefits of RDM?
Questionnaire – Rate Your Data Management
FAIR Data
6 Topics
FAIR Data – Introduction
Exercise: Identify FAIR data
How to Achieve FAIR Data
OPEN Data
FAIR vs OPEN
Open Science
Research Data Frameworks
1 Topic
University Policies
Funder Requirements
3 Topics
Funder Requirements – Introduction
European Commission – Horizon 2020
FWO
The Data Management Plan (DMP)
2 Topics
DMP – Introduction
Questionnaire – Your Main Reason for Writing a DMP
RDM Support
1 Topic
Contact Details
1. Preparing a DMP
Tools
1 Topic
Tools – Introduction
DMPOnline
9 Topics
7 Main Themes
Theme 1 Data Description
Theme 2 Ethical and Legal Issues
Theme 3 Data Documentation and Metadata
Theme 4 Data Storage and Backup During the Project
Theme 5 Data Preservation after the End of the Project
Theme 6 Data Sharing and Reuse
Theme 7 Responsibilities
What is DMPOnline?
VIB Forms
10 Topics
General Information & Datasets Information
Data Types & Data Purpose
Ethical and Legal Issues
Making Data Findable
Documentation and Metadata
Data Storage & Backup During the Project
Data Access: for Whom and under Which Conditions?
Data Preservation after the End of the Project
Responsibilities
Ready to Submit?
Data Collection
5 Topics
The Data Flow
Discover Data
Assess the Usefulness of Existing Data
Data Collection – Introduction
Training Video: Current Ways of Finding Existing Data
Copyright and Intellectual Property Rights (IPR) Issues
2 Topics
About Data Ownership
Confidential or Privacy-Sensitive Data
Licences
3 Topics
About Licences
Software Licences
Training Video: Providing Licences to meet requirements for reuse of datasets and software
Costs Involved with Managing Your Data
2 Topics
Costs – introduction
Data Management Cost Guide
2. Documenting and Organizing Data
Data Documentation
7 Topics
Data Documentation – Introduction
Why Document Your Data?
Examples of Data Documentation
Different Levels of Data Documentation
Metadata
Data Standards
Exercise: Data Standards
Organizing
9 Topics
Research and Lab Notebooks
File Formats
File Naming
Version Control
Folder Structure
Good File Management
Benefits of Good File Management
Do’s and Don’ts
Batch Renaming of Automatically Generated Files
Documenting & Organizing – References
1 Topic
Documenting & Organizing – References
3. Storing Data and Data Security
Data Storage
11 Topics
Data Storage – Introduction
Things That Can Go Wrong
Questions to Consider
Shared or Individual Data
Access Management
External/Cloud Storage
Single or Multiple Storage
Additional or Tailored Services
Store Your Masterfile
Backups
Questionnaire: How Much Data Would You Lose if Your Laptop Got Stolen?
Data Security
6 Topics
Data Security- Introduction
Data Breaches
Prevent Unauthorised Access
Questionnaire: Prevent Unauthorised Access
Legal Agreements and Contracts
Exercise: When to Use Which Legal Contract?
Privacy
8 Topics
Privacy in a Nutshell
Privacy-sensitive Data
Six Principles from the European General Data Protection Regulation
Privacy by Design
Exercise: Which Data Breach Is Breached?
Storing Personal Data
Cases on How to Make Personal Data Accessible
Informed Consent
Storing Data & Data Security – References
1 Topic
Storing Data & Data Security – References
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Privacy-sensitive Data

Writing a Data Management Plan Privacy Privacy-sensitive Data

Personal data is any information relating to an identified or identifiable natural person (‘data subject’). Personal data is by definition privacy-sensitive and deserves special attention, both from an ethical as from a legal point of view. This applies in the highest degree to certain personal data that is considered particularly sensitive, such as information on race, ethnicity, health, criminal record, sexual orientation, beliefs and economical status. In this part of the course you will leam to:

  • Understand the concept of privacy by design;
  • Translate the seven principles of data protection from the European General Data Protection Regulation to your own situation;
  • Recognise when data is identifiable and lean about measures you can take to protect your participant’s privacy;
  • Understand how sharing of research data that relates to people can often be achieved using a combination of obtaining consent, anonymising data and regulating data access.

Access to Privacy-Sensitive Data

If and how you can make personal data available, depends on the level of sensitivity of your data. The more sensitive, the more restrictions and safeguards need to be put in place to make sure the data does not fall into the hands of unauthorised persons both during and after research.

To determine where the privacy risks lie for your data you will have to do a Data Privacy Impact Assessment (DPIA).

For more information, you can visit the guide Handling Personal Data

Towards the data subjects, you need to be transparent regarding the possible reuse, or retaining of the data for verification requirements, and get their prior consent.

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